10 Reasons to Celebrate your Baby who has Down Syndrome

I write this as part of my new series, ten reasons. The main reason I started blogging was to educate people about Down Syndrome and this began when Ellie, my daughter, turned 10 this will become and I’ve decided this will be a new feature.
In addition, this title is one I have thought about for some time after reading the amazing article https://themighty.com/2019/07/celebrating-baby-down-syndrome-diagnosis/ and decided there were many more reasons that five, so let’s begin.

First may I just add that I wish I had read a blog post like this when we received our own diagnosis with Ellie because unfortunately it wasn’t pleasant, see here
https://t21hub.com/2019/08/17/the-first-chapter-with-ellie/

Here Are My 10 Reasons

  1. You have been given a diagnosis of Down Syndrome and you now may have a preempt view of your new life as a mum. Stop!
    No new mum can predict their child’s day let alone their future.
  2. You may begin to worry about your child reaching milestones, such as walking and talking. Stop!
    Each child gets to where they want to be when they are ready, including yours.
  3. You may start to worry that your child will grow up lonely, with no friends or social life. Stop!
    You are just about to join an exclusive community, the Down Syndrome community, which will have enough friends in there for your child, for you and for your family.
  4. You may be concerned about your child’s immune system and overall health. Stop!
    Your child may or may not need additional support, such as intervention and wearing glasses; remember there are many children these days that need help with speech and sight these days.
  5. You may be feeling overwhelmed, I know I did and not sure what to do next. This is completely natural. I would not suggest going on Google or diving straight into an outdated book. I would suggest simply holding your child that little bit longer for a cuddle even if you are feeling emotional.
    Here’s a book I would recommend though
    https://www.wouldntchangeathing.org/product/wcat-book-by-celebrate-t21/?fbclid=IwAR1dwSxdh4_k1XhU3CwYqtmMnqgxkGMee8GCUqKZ8YztF5c6nmc6-EmQmys
Here is my daughter Ellie, just a few days old doing what all babies do; sleep and look cute.

6 Do not stereotype your child, they will grow up to be more like you than different and most stereotypes these days are extremely outdated
https://t21hub.com/2019/05/08/challenging-some-myths-and-stereotypes-around-downs-syndrome/
7. You may be concerned about future independence, please rest assure that many individuals with Down Syndrome are living as independently as possible. They are going onto find employment, become celebrities and get married. Have you not heard of the amazing Sarah Gordy
https://en.wikipedia.org/wiki/Sarah_Gordy
8. Are you worried about siblings, new or future ones? Stop!
Speak to other parents and find out the same as I did, future siblings are not guaranteed to receive the extra chromosome, that’s only for the privileged. Most children go onto love their siblings even more as they develop a true bond.

Ellie with her younger brother, Billy aged 10. Their love is real and doesn’t count chromosomes.

9. You may feel that your child will not be able to take part in the community. Stop!
They can and they will, if you want them too. Many children go to mainstream schools and lots of after school activities are inclusive or tailored to meet the needs of all children. Ellie enjoys drama and swimming, she currently has performed with http://Bamboo Studios several times in front of large crowds.
10. You have a baby, a baby that has an extra chromosome, that’s all for now> Enjoy the journey and take the pictures even though I promise you, you will never forget a milestone like many other parents do.

To Summarise

I’m sure with the help of other parents we could get these top 10 reasons to celebrate your baby with Down Syndrome to 1000 and one day you might read that blog. If you are reading this as a new parent, try not to be scared even though all emotions and reactions are normal, accept them. Enjoy being a mum you’ve waited approximately nine months for this.

If you are an existing parent to a child with an extra chromosome, can you add in the comments an additional reason to celebrate.

Finally if you are reading this as not a parent to a child with Down Syndrome but know someone that may benefit from this blog and website, please share and help us spread awareness.

If you would like to connect with me personally, please go to my Work With Me page
https://t21hub.com/contact-me/

Until Next time and as always thanks for reading
Sharon x



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Comments

October 1, 2019 at 7:43 am

Aw what a lovely read! And what beautiful children you have 🖤



October 1, 2019 at 8:47 am

Brilliant blog, it’s great that you can provide the support to others that you missed.



October 1, 2019 at 11:28 am

I LOVE THIS! Breaking stereotypes surrounding Downs Syndrome is so important and new mums shouldn’t be scared of it. The way Iceland treat Downs Syndrome is appalling and the way the UK announce Downs Syndrome is disgusting, let’s stop terminating babies because of a chromosome!



    SharonCrowley
    October 1, 2019 at 1:13 pm

    I couldn’t agree more and just let parents get the truth from families rather than professionals and let them make their own mind up.Thanks for reading 🙂



October 1, 2019 at 1:03 pm

I love the way your wrote this post! It’s full of positivity and encouragement for parents of children with the Down Syndrome but also very educational for anyone who reads it! Beautifully written!



October 1, 2019 at 3:09 pm

Forget all your pre-existing ideas and judgements is a really important message for all new parents! And I hope your celebration of your lovely daughter helps any parent who might be struggling to come to terms with a DS diagnosis. X



October 1, 2019 at 6:07 pm

I always love your message, Sharon. I can imagine there is loads of outdated information out there, and I expect Google searching could frighten new parents, as you say. It’s great to hear there’s a supportive community out there, and that you’re spreading such positive vibes. Xx



    SharonCrowley
    October 2, 2019 at 12:31 pm

    Thank you so much Anita and Google can be the enemy at times but honoured that I can help contribute to a more positive outlook xx



Mandy Worsley
October 1, 2019 at 7:52 pm

What an amazing read 💜 thanks for sharing.



October 1, 2019 at 8:01 pm

Great post, i’m Sure it would really help parents with a recent diagnosis. X



Renee
October 19, 2019 at 12:44 pm

Beautiful daughter and incredible tips xx



October 19, 2019 at 4:57 pm

Such a valuable post for parents who may be facing into this, and also for others wanting to support a child with downs syndrome. Thanks for highlighting how the supporting community is so important.



    SharonCrowley
    October 24, 2019 at 3:12 pm

    Thank you for taking the time to read and comment. And the community is vital for emotional welfare I believe 🙂



November 16, 2019 at 1:43 pm

*You made some decent points there. I looked on the internet for the issue and found most individuals will go along with with your website.



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